Hi everybody.
Yesterday I made progress with my fatigue. I am so happy about this.
- incase I haven’t seemed myself this last few weeks I will give a little story of what happened to me.
2 years ago. November 2020 i caught covid as my fiancé had it and had caught it from a friend. It was before the vaccines were available. The initial friend who we got it from became very ill and was hospitalised. She is a Nurse but can no longer see patients due to health issues so does coordinater management work. ( community nhs team)
My girlfriend got covid worse than me when we had it, and for a few weeks after used to get out of breath more than me.
6 weeks later. Something happened at work. ( i also work as nhs community health care worker ) which indicated i had a problem with my bladder.
This problem didnt go away and has continued since and is being fully investegated although no diagnosis can be made despite scans, tests and ha hmm a very recent camera procedure down the little chap. ( nice!)
. Cystoscopy - had it on Tuesday 4 days ago. Painful so horrible I kept making loud odd high pitched noises. I apologised but the consultant said its fine, people often throw fists at him during the procedure.
Luckily the moment it was over the consultant told me, its not cancer but we aren’t actually sure what it is causing your symptoms. - I shook his hand. A big relief but still, im not sure what’s causing it.
Ive been off work for 5 weeks because I physically crashed at work and had to sit ln my car for over an hour to get my breath back. It actually took 2 hours during which my Pulse ( not PWM
) had raised by 25% for all of that time. ( I had my finger oxymeter that measures pulse and blood oxygen) my blood oxygen levels were well below healthy during that 2 hours too.
Anyway i was given time off work and work has been very supportive. My GP has been incredible.
I have been diagnosed with post covid fatigue and now belong to a supporti group to help me. I have been afraid i may not be able to work with patients again as over the past few weeks there have been times i have been exhausted after doing such little it’s unbelievable.
- But yesterday, progress was made. My fiancé is getting very tired as she is both looking after me, her daughter and working 30 hours a week as an nhs community maternity support worker and unfortunately work has been incredibly busy lately. So i thought i would help out more round the house while she was at work. I did a mountain of washing up. Could have made a sculpture out of the results!
. I then emptied the washing machine ( dryer) which produced a massive ikea bag load of washing to put away. I was going to do half but just kept thinking how tired my fiancé is. I did it all! I then trimmed my beard, my fiancé was hinting it had become a bit bristly and uncomfortable for her. ( well i cant have that can I
) After doing those 3 physical things I sat on my bed and realized I didn’t take a rest during any of it. I was only breathing a little faster and my pulse was a bit higher but no more than expected.
I hadn’t been this good at physical stuff for a month without suffering. But… i was doing well today. So happy because i aswell as not being able to work had wandered if id ever be able to go to a trance club night againnas recently had to give away an Anjunadeep ticket to my mate. I also wondered, if my music ever gets enough fans etc i might not actually be able to play propper live performances again. ( ive had to cancel all electronic open mic performances which i was to do which gutted me). Missed performing at my electronic open mic group Christmas performance!
Finished a track at home that night instead. At least ive had my ‘cupboard of creativity’ - writing music has been my therapy so im grateful i could do that.
And - just incase I’ve been a slight dick on here ever, I apologise as there have been low times.2 days ago, the day the nurses were on strike I actually cried propperly for the first time in many years, i was writing about the nhs at the time on a electronic producers Facebook post about the support he had for the nhs.
- I now have hope and my dreams ( which include positive change in music scene etc) are still allive as I feel im going to beat this!
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